|
|

Q: Does Raja attend school?
A: Yes, Raja attends school. Raja started school in January 2004. He attends
a mainstreamed Kindergarten class with 17 students, a teacher, and a teacher's
aide.
Raja is doing beautifully in school. Within the first 4 weeks of enrollment,
Raja earned an achievement award that was presented to him in a school
assembly (See Raja Cheney Wins Achievement Award).
Prior to enrolling Raja in public school, I chose to home school him because
his recovery needs were greater than could be easily accommodated at school.
Q: Do you feel
Raja's educational needs were being met at home?
A: For Raja, home schooling was an integral part of autism recovery. To
me, "home schooling" and "autism recovery" are interchangeable
terms because home schooling allowed Raja the time and space to strengthen
and grow on his own terms, acquiring skills such as language, attention
span, and calm, appropriate behavior such that he could enjoy, and benefit
from, school. However, now that Raja is in school, I am moved to amazement
at how quickly and easily he has adjusted, happily participating in social
and learning activities each and every day.
Considering the extent to which Raja's chemical sensitivities limited
our participation in mainstream activities, his comfort and ability to
succeed in school is uncanny. After all, he was diagnosed with severe
autism in June of 2000, lacking language skills, attention span, gross-
and fine-motor skills while possessing extreme tactile defensiveness and
sensory hypersensitivities. He was terrified of new people and surroundings,
clinging to me for dear life. 3.5 years later, he is actively and happily
participating in a mainstreamed Kindergarten class without an aide, having
never attended preschool, Sunday school, or other organized educational
activities. To me, it is nothing short of miraculous and is a testament
to home schooling when we needed to in order to prepare for the rigors
and chemicals in a typical school setting.
Regarding the relationship between home schooling and children with special
needs, studies have shown that children with special needs fare better
when home schooled because the level of one-on-one attention is so much
greater than in mainstream educational settings. At the time that Raja
and I home schooled, I felt that this was our best choice because it allowed
me the capacity to closely monitor his progress while providing the freedom
to respond to situations in the moment (e.g., If the park had just been
sprayed with pesticides, we could quickly and easily change plans rather
than subjecting Raja to a 3-day developmental setback from pesticide exposure).
If you feel that home schooling is an appropriate and comfortable alternative
for you, there are many sites on the Internet to help you achieve your
goals, as well as providing networking opportunities with local, state,
and national home schooling groups.
Q: Has Raja received
any Applied Behavioral Analysis (ABA)?
A: No.
Q: Has Raja received
chelation therapy, vitamin shots, or Secretin?
A: No.
Q: Has Raja spent
time in a sauna?
A: No, Raja has not used a sauna. Raja and I react to our own perspiration
by breaking out in an uncomfortable, itchy rash so we avoid saunas. However,
we spend afternoons outdoors every day to get our exercise and participate
with nature by hiking, swimming in nearby rivers, and playing at local
parks. Outdoor exercise is a large component of Raja's recovery.
Q: Was Raja vaccinated?
A: Yes, Raja received vaccinations twice. The first round was administered
when he was six months old; the second round was administered six months
later. During each visit, he was double-dosed. In other words, because
he had not received his vaccinations according to the inoculation schedule,
his pediatrician chose to have him double-dosed to make up for missed
shots.
Q: Did you notice
developmental regression resulting from vaccinating?
A: No. However, after the first round of vaccinations, I ached to see
band aids covering multiple injections on Raja's legs and began crying
when I smelled chemicals oozing out of his system. I sobbed and sobbed,
looking at this tiny, vulnerable boy, feeling that something was terribly
wrong that a human infant smelled of chemicals. At that time, we belonged
to a group medical and hospitalization plan that put all patients on the
same treatment schedule. The medical personnel completely dismissed any
harm associated with vaccines (this was 1997 and no suits had been filed
regarding a link between vaccination and autism). Moreover, they vocalized
strong disapproval at vaccinating Raja when he was six months old, rather
than two months old, as prescribed by the plan. I feared our medical coverage
might be dropped if we did not comply with their plan so Raja was vaccinated
again six months later. I had the same response to the second round of
immunizations, intuitively feeling that something was terribly wrong with
vaccinating. I investigated the dangers, medical consequences, and social
ramifications of avoiding vaccinations in the future. Raja was never vaccinated
again, but was diagnosed with autism in 2000.
Q: Do you believe
immunizations caused Raja's autism?
A: While I believe that Raja was predisposed to autism from birth and
do not believe that immunizations caused Raja's autism, I believe vaccines
contributed to the toxic load Raja was already carrying (Raja was breast-milk
jaundiced at ten days old, indicating his liver was overloaded, but his
bilirubin count did not warrant a blood transfusion). Further, I believe
the medical establishment pushes for immunizations far too early, before
a child's immune system is even developed, and that parents should be
fully informed and supported in their choices regarding whether or not
to immunize.
Q: How do you measure
Raja's recovery?
A: First, Raja expresses ongoing, measurable, and spontaneous developmental
progress in all areas (cognitive, behavioral, social, gross- and fine-motor
skills, planning and processing abilities, and of course, language, language,
language). Second, Raja's diet has increased as he can now consume a number
of foods that formerly produced reactions. Third, the duration and symptoms
of reaction are decreasing. Where a reaction used to cost three days'
developmental loss, a reaction now lasts from 20 minutes to 1 ½
days. Additionally, Raja used to lose three days' development regardless
of what he was exposed to, from a bite of reactive food to an encounter
with an environmental trigger. Now, his reaction times are vastly reduced
and are related to the substance he encounters. He can extend his stay
in environments that used to produce immediate reactions such as a public
restroom where scented cleaners were used. Sometimes he has no reaction
as a result of interaction in a given environment that used to produce
reactions. His immune system has significantly healed, allowing him to
more readily detoxify the triggers he encounters. This is a key measure
of recovery.
Q: If your house
has been converted to meet Raja's recovery needs, do you ever leave it?
A: Yes, we leave the house. We go outside for exercise and to commune
with nature. We go grocery shopping, to the post office, and shopping
for necessities like clothes and shoes. We participate in educational,
fun, or social activities, like going to the park, zoo, or aquarium. Also,
we have traveled quite a bit during the recovery period, driving across
the country twice and taking a long, round-trip flight to Florida where
we spent time in several airplanes and airports. While trips require a
significant amount of advance planning regarding food preparation, they
have added to Raja's life experiences. Because airports are airplanes
are confined spaces with nowhere to get fresh air or exercise, we have
limited our flight experiences for the time, but fully expect to be able
to engage in travel more often in the future.
Q: Do you rotate
Raja's diet?
A: I do not rotate Raja's diet the way a traditional rotation diet does.
What I "rotate" is any food that disrupts his digestion if eaten
two days in a row. For instance, when Raja eats eggs, he has no digestive
disruption the first day. However, if he eats eggs two days in a row,
he becomes constipated. Thus, we do not rotate eggs in the formal sense,
but we do rotate eggs in that he cannot have them but occasionally to
prevent digestive disruption.
Q: in Climbing
out of Autism One Bite at a Time, you did not address ridding your home
of plastic, yet in your web site, you make it clear that plastic should
be avoided. Why?
A: Ridding the home of plastic is an advance I made since Climbing out
of Autism One Bite at a Time as published. On my web site, I list advances
made since the book's publication under the heading Climbing out of Autism
One Bite at a Time: The Companion.
Q: What is wrong
with plastic?
A: Plastic emits VOCs, or volatile organic compounds, that constantly
circulate in the environment. Unlike glass or stainless steel, VOCs do
not stabilize. Since VOCs do not stabilize (they constantly out-gas),
our homes do not stabilize. If our homes are in a constant state of out-gassing
and destabilization, our bodies are in the same state, constantly bombarded
by an invisible chemical load we must detoxify. I will share our plastic
story to illustrate this concept.
While gathering plastic objects from our home, I placed them in a discard
pile located in the extra bedroom. As the discard pile grew and the rest
of the house became plastic-free, I noticed Raja was spending a lot of
time the extra bedroom and when he exited, he was wild and hyperactive.
During this time, a parent called me with recovery questions. Because
an initial phone call is usually a long one, I took the call in the extra
bedroom, talking and working simultaneously. Within minutes, my sinuses
started congesting and my TMJ acted up. The longer I spent in that room,
the more physical discomfort I experienced, including neck pain, shoulder
stiffness, and feeling pressure on my head. The moment I hung up the phone,
I moved all the plastic outside and redoubled my efforts to get the remaining
plastic out of the house. Until that experience, I had not realized that
Raja was addicted to plastic, choosing plastic toys (and even chewing
on them) to get his "fix." Additionally, I never realized that
plastic has a smell, a very distinct smell, which became obvious while
spending time in the extra bedroom. When all the plastic was removed from
the house, an unexpected and very welcome feeling of peace permeated our
home.
The newest research regarding plastic and human reproduction is chronicled
in the September 2003 edition of Delicious Living magazine in an article
entitled If Pregnancy is in Your Future, Beware of Plastic. According
to the article, Patricia Hunt, Ph.D., primary author of a study conducted
at Case Western Reserve University regarding a chemical found in plastic
and its effects on reproductive integrity believes the chemical is potentially
hazardous to human reproduction. Further, she believes that contact with
the chemical, which is found in such common products as baby bottles,
drinking water bottles, refrigerator shelves, CDs, nail polish, artificial
teeth, and is used in a coating dentists apply to teeth to prevent cavities,
increases the risk of miscarriage and the offspring's chance of Down syndrome
and related disorders. Finally, Hunt's research indicates this chemical,
bisphenol A or BPA, can leach out of plastic as the material ages or when
in contact with microwaves or dishwashing detergents. This is but one
study regarding plastic and its long-term impact on humans. Because plastic
contains VOCs, and because we do not even know the myriad health risks
associated with plastic products due to lack of adequate testing, I would
strongly recommend removing as much plastic as possible from all environments
in which autistic children spend time, including home and school.
Q: Do you have
any plastic objects in your home?
A: Yes, but we have reduced to the bare minimum. We have a computer, printer,
television, VCR, two cordless telephones, an answering machine, and some
movies (with outer cases removed) that contain plastic. We do not possess
toys, kitchen equipment, night lights, storage bins, decorations, holiday
ornaments, or other miscellaneous items that contain plastic.
Q: Your results
with Raja are inspiring, but your approach seems overwhelming. Can your
approach be simplified?
A: You can simplify my approach by categorizing the components and breaking
them down into smaller parts. For instance, the dietary portion of the
intervention has many parts, including allergy testing, shopping for organic
foods, and cooking from scratch. If you take one step at a time and implement
what is comfortable for you and your family, you will succeed. I think
the most important step in making anything successful is follow-through,
and following through to completion usually involves realistic planning
and implementation.
In the beginning, I, too, was overwhelmed, but reached the goal one step
at a time.
For me, this approach is easier, seems more natural, and is better suited
to my personality than behavioral models. Additionally, Raja's progress
seems more "fluid" than "trained" and I like watching
his skills, abilities, and relationships open up spontaneously. For instance,
I recently learned that Raja appreciates humor borne out in language and
that I can make him laugh with words alone. I love it! I love laughing
together. I especially love that we are laughing about a concept expressed
in words. Moreover, Raja is attending to the outside world, both in nature
and people. I delight in observing him as he watches a bird fly in the
air, discussing whether it is an eagle, a buzzard, or a crow, or watching
him initiate the farewell greeting to the postmaster without prompting.
Like all advances Raja makes, these strides are very, very exciting to
me, not only because they increase the enjoyment he and I experience together,
but because they bode so well for his future - a concern of mine that
is diminishing as his development progresses. For me, Comprehensive Organic
Intervention is an investment that keeps paying off as life keeps getting
better, easier and more fun all the time.
Q: Do you wear
makeup? If so, what kind?
A: I wear a line of natural cosmetics that I purchase at the health food
store and the brand is Kosmetik Sante. Kosmetik Sante makes foundations,
powders, blushes, eyeliner, and lipstick. Because my skin is sensitive,
I do not wear foundation, powder, or blush. Although I occasionally wear
lipstick, I do not wear it around Raja because I do not want it to transfer
to him (foundation, powder, or blush could also transfer while hugging
face-to-face and should be avoided). Raja has never expressed a reaction
to my choice of makeup, but if he did, I would not wear it at all. Some
children are so sensitive that even the ingredients in natural cosmetics
cause a reaction. Kosmetic Sante does not have a web site, but you could
contact the importer for more information if your local health food store
does not carry a suitable, natural alternative:
Logona USA, Inc.
554 Riverside Drive
Asheville, NC 28801
Q: Do you dye your
hair? If so, what do you use?
A: I dye my hair using hydrogen peroxide. My natural hair color is brunette,
the color of Raja's, and I have achieved a shade of blonde by applying
hydrogen peroxide once every couple of weeks when the roots start to show.
Hydrogen peroxide is safe, non-toxic, and inexpensive. You can even highlight
your hair with hydrogen peroxide by using a highlighting cap and applying
hydrogen peroxide directly to the strands pulled outside the cap.
Q: Are you familiar
with the Special Foods program?
A: I am familiar with Special Foods insofar as reviewing the literature
that the owner, Karen Slimak, has produced. I believe that she and I operate
along the same theoretical lines, although our approaches to recovery
are very different. I am only vaguely familiar with the Special Foods
requirements for the clean room as this advance emerged after I reviewed
the Special Foods literature and listed her program in my book.
I suspect that Ms. Slimak created the Special Foods program because her
approach worked for her kids, just as I wrote my book because my approach
worked for Raja. We all gravitate toward what works for us and share it
with others hoping that it will help them, too. However, I am not affiliated
with Special Foods, Karen Slimak, or any program or proprietor listed
on my web site under Additional Recovery Resources. If you are considering
enrolling in a program, please conduct thorough research, ask for worst-case
scenarios, and verify references before enrollment commences to be certain
that the program does not exceed your finances, support system, or expectations.
Q: Do you maintain
the same diet as Raja?
A: Yes.
Q: Have you noticed
any changes in your health?
A: Yes, there have been many changes in my health. First, I have maintained
my natural body weight without effort for the past several years as a
result of eating what is right for my individual biochemistry. In contrast
to my past, I am no longer constantly hungry or constantly fatigued, feeling
better, stronger, and more mentally alert than I have since I was 15 years
old. Additionally, I appreciate the experiential knowledge I have gained
regarding the connection between mood and food, especially the relationship
between blood sugar levels and allergens, and how blood sugar affects
perception and influences mood swings. Finally, I am thankful to live
in a home that has clean air and clean water and is free of plastics and
other items that constantly out-gas. I never knew how much out-gassing
affected me until I removed all the offenders from the house and felt
completely calm and relaxed again.
I think the most amazing aspect of this lifestyle is how I am often reminded
of things from my childhood - seeing my grandmother's home reflected in
the "old style" non-toxic products I buy; smelling the sugar
and flour as we pass the baking aisle in the grocery store (I had completely
forgotten that I could actually smell that sweet, comforting aroma as
a child); recalling the walk to the candy store where my sister and I
would spend our allowances buying jawbreakers stored in screw-top glass
jars like mine. Good times, good memories. This lifestyle often reminds
me of the little things that were indelibly imprinted in my childhood
mind that are a joy to recall and relive.
There is also the flipside. I remember spending hours swimming in chlorine-filled
pools and marveling at how the chlorine turned my hair green; playing
under the cottonwood trees as the DDT trucks sprayed child and tree in
one fell swoop; swallowing diet pills and enduring starvation to fit into
a size 5; applying perms to my hair for some 15 years. I look in my mouth
and cringe, counting 9 mercury-filled teeth, knowing that this poison
was stored in my body and could have passed from my body to Raja in the
womb or via breast milk. I close my eyes and see the shoreline of the
pea-green lake where I grew up and remember the summer the lake stagnated,
bearing thick, turquoise-colored foam as far as the eye could see. The
stench was so bad we could not open our windows. Every day I watched my
beloved lake and waited for signs of life. What would happen to the fish?
Where were the ducks? The experts said that lakes do that from time to
time, that they "turn," but it never felt natural to me. As
I hold Raja and look deeply into his smiling eyes, I wonder what toxins
lurked in the thick, green water of my youth - the water we used for drinking
and recreating, the water we assumed safe (even though it tasted bad)
because we were told that it was. Do any of my cohorts have autistic children?
Memories and questions mix and swirl in my mind. These lingering impressions
fuel my thirst for knowledge in the quest to end autism's propagation
and suffering.
|